Hotline: 1-866-737-5999

SDS/MSA FAQ - PDF Download 
Home |About Us |Support |Education |Research |Advocacy |Fundraising| Contact Us
History of SDS/MSA Charity
Position Statement
MSA Forums
The MSA Blog
MSA Events
Annual Conference
Sophies Search for a Cure DVD
Movement Disorder Clinics
Doctors & Clinics
Common Symptoms of MSA
Diagnosing MSA
MSA Demographics
MSA Description by NIH
MSA vs Parkinsons
Sympathetic Nerves in MSA
Neurogenic Orthostatic Hypotension
MSA Glossary of Terms
Annual Conference DVD
The MSA Research Fund
MSA Research Grants
Research Grant Application Form
AAS - MSA Research Award
MSA Research Updates/Results
What is the ANS
Board of Directors
MSA Coalition Press Releases
Position Statement
MSA Coalition History
Waters Pressor Effect
Donate
Shop Now - MSA Tee Shirts
Donate
The MSA Research Fund
Start a Fundraiser
Memorial Envelopes
MSA Advocacy
The MSA Blog
Support Group Meeting DVD
Sophies Search for a Cure
MSA FAQ
Annual MSA Conference
Doctors and Clinics
SDS/MSA Clinical Trials
Local Support Groups
Hospice Information
Board of Directors
Site Map


The Multiple System Atrophy (MSA) Research Fund

The MSA Coalition has an established multiple system atrophy research fund to support finding the cause of SDS/MSA and eventually a cure.  As a 501(c)3 charity all donations made to the MSA Coalition and the MSA Research Fund are tax deductible for U.S. tax payers.  It is the MSA Coalition’s belief that with a small number of MSA patients in the U.S. and globally, a centralized MSA Research Fund is critical to pooling money so the funds can be used in the most effective way possible.  To ensure the MSA Research Fund is put to good use on behalf of all MSA patients the Coalition has the following business rules to allocate the funds appropriately. 

The MSA Research Fund rules are as follows:

  • A money market account holds The Multiple System Atrophy (MSA) Research Fund, separately from the MSA Coalition's general fund that is used to support educational, support and advocacy activities, as well as minimal administrative expenses.

  • A portion of every donation goes directly into the MSA Research Fund

    • If the Coalition’s general fund is above a defined level 75% of all donations go to the MSA Research Fund and 25% goes to the Coalition's general fund and is used for educational and advocacy activities, as well as to cover  minimal administrative expenses.  Since 2010, the MSA Coalition general fund has remained above the predetermined minimum, thus ensuring 75% of all donations during that time period have gone to the Research Fund.

    • If the Coalition's general fund drops below the defined level 25% of all donations go to the MSA Research Fund and 75% go to the operating account, until the Coalition has restored the general fund to an operational level.

The MSA Research Fund will be used to support multiple system atrophy research determined by the MSA Coalition Board of Directors to be meaningful and worthwhile in leading to finding a cause and eventually a cure for MSA.

What the MSA Research Fund Supports:

The Multiple System Atrophy Research Fund is used to encourage and finance meaningful MSA research leading to the identification of causes, effective treatments and hopefully a cure.  Two important programs are now active and receive funding from The MSA Research Fund:

The Multiple System Atrophy Research Grant Program

Launched in April, 2013 The MSA Research Grant Program is designed to fund the most promising multiple system atrophy research.  Researchers are encouraged to submit their proposals to The MSA Coalition where it will be reviewed by a world-class scientific advisory board (SAB) and advocate research committee (ARC).  On an annual basis the SAB and ARC will award funding to the most promising MSA research.

The American Autonomic Society MSA Travel Award

Run in partnership with the American Autonomic Society (AAS) the MSA Travel Award provides annual awards for the best MSA research presented at the Annual AAS meeting.  These grants to the AAS encourage MSA research by providing researches an incentive to study this rare disease and to receive recognition and financial support for doing so. 


Please contact the MSA Coalition if you have any questions about donating to the MSA Research Fund.  

Click here to donate to the MSA Coalition and the MSA Research Fund!