The Multiple System Atrophy (MSA) Research Fund
The MSA Coalition has an established multiple system atrophy research fund to support finding the cause of SDS/MSA and eventually a cure. As a 501(c)3 charity all donations made to the MSA Coalition and the MSA Research Fund are tax deductible for U.S. tax payers. It is the MSA Coalition’s belief that with a small number of MSA
patients in the U.S. and globally, a centralized MSA Research Fund
is critical to pooling money so the funds can be used in the most
effective way possible. To ensure the MSA Research Fund is put to good use on behalf of all MSA patients the Coalition has the following business rules to allocate the funds appropriately.
The MSA Research Fund rules are as follows:
A money market account holds The Multiple System Atrophy (MSA) Research Fund, separately from the MSA Coalition's general fund that is used to support educational, support and advocacy activities, as well as minimal administrative expenses.
A portion of every donation goes directly into the MSA Research Fund
If the Coalition’s general fund is above a defined level 75% of
all donations go to the MSA Research Fund and 25% goes to the Coalition's general fund and is used for educational and advocacy activities, as well as to cover minimal administrative expenses. Since 2010, the MSA Coalition general fund has remained above the predetermined minimum, thus ensuring 75% of all donations during that time period have gone to the Research Fund.
If the Coalition's general fund drops below the defined level 25% of all donations go to the MSA Research Fund and 75% go to the operating account, until the Coalition has restored the general fund to an operational level.
The MSA Research Fund will be used to support multiple system atrophy research determined by the MSA Coalition Board of Directors to be meaningful and worthwhile in leading to finding a cause and eventually a cure for MSA.
What the MSA Research Fund Supports:
The Multiple System Atrophy Research Fund is used to encourage and finance meaningful MSA research leading to the identification of causes, effective treatments and hopefully a cure. Two important programs are now active and receive funding from The MSA Research Fund:
The Multiple System Atrophy Research Grant Program
Launched in April, 2013 The MSA Research Grant Program is designed to fund the most promising multiple system atrophy research. Researchers are encouraged to submit their proposals to The MSA Coalition where it will be reviewed by a world-class scientific advisory board (SAB) and advocate research committee (ARC). On an annual basis the SAB and ARC will award funding to the most promising MSA research.
The American Autonomic Society MSA Travel Award
Run in partnership with the American Autonomic Society (AAS) the MSA Travel Award provides annual awards for the best MSA research presented at the Annual AAS meeting. These grants to the AAS encourage MSA research by providing researches an incentive to study this rare disease and to receive recognition and financial support for doing so.
Please contact the MSA Coalition if you have any questions about donating to the MSA Research Fund.
Click here to donate to the MSA Coalition and the MSA Research Fund!